Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyHeartDiseaseTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyHeartDiseaseTeam Member asked a question 💭
Roswell, GA

I have a question for y'all. Is there anyone who has had AV Node ablation, and if so, how are you feeling now? I already have a pacemaker, so that is not a problem. This is a consideration that I have to chew on. I have to decide if trying another ablation for the Atrial Flutter is an option or if I should just go for the AV node ablation from he get-go? Any input is appreciated. Thanks!

July 27, 2025
 · 
Reactions

Answer Summary

Members responded to a question about AV node ablation experiences, sharing widely varying outcomes and considerations for this non-reversible... Read more

Members responded to a question about AV node ablation experiences, sharing widely varying outcomes and considerations for this non-reversible procedure that requires permanent pacemaker dependence. Several members described their personal journeys, including one who avoided ablation entirely by managing afib with natural medicine for two years, another who experienced life-threatening pulmonary edema immediately after the procedure but is now thriving years later, and one who underwent the ablation in 2024 due to excessive scar tissue but now lives with constant atrial tachycardia without symptoms. A recurring theme was the complexity of individual cardiac situations, the importance of consulting specialized electrophysiologists who understand congenital conditions, and the value of weighing risks carefully before choosing between standard ablation attempts versus the permanent AV node option.

A MyHeartDiseaseTeam Member

No, I have not. After testing there has been no follow up from the Dr.
I requested a letter from the Dr. about my CAD. The nurse called me back
saying the Dr. wanted to know what I wanted. I felt he was playing games.
All they said is I have a 1 percent chance for a heart attack.
I am frustrated with Kaisers doctors
My hip is bad. It has developed degenerative issues. Walking, getting up
and down is most difficult. I live in chronic pain. This week I was put on
meds, for pain.
Mon they are sending home health to my house. I need a hip replacement the
Dr. is booked out 6-9 months. I requested to go outside of Kaiser. They
are seeking approval.
I feel like a tiger! I am not sure what an ablation is. This is new to me.
I may have read a post but forgotten.
Lanet Forrest

July 27, 2025
A MyHeartDiseaseTeam Member

Wow, all of you have had so much going on. Our bodies are so unique. Best wishes to everyone, and prayers for all of you! Love, Sue581

July 27, 2025
A MyHeartDiseaseTeam Member

I had AV node ablation on October 9, 2024, because they weren't able to do the other ablation. I had too much scar tissue. I also already had a defibrillator. I'm doing well, but am in Atrial Tachycardia all the time now. I don't notice any symptoms this time though. I see my cardiologist in October and will talk to him about it.

July 27, 2025
A MyHeartDiseaseTeam Member

Thanks for asking the question, I will be following for answers.I think an ablation is in my future, but I’m not sure of the type.

July 27, 2025
A MyHeartDiseaseTeam Member

I had an AV Node Ablation in 2021. (I already had an implanted pacemaker.) I not sure how the ablation has impacted my cardio heath. The procedure took about 45 mins. The I went to a recovery room for 2 hours after the procedure. When told I could leave, I couldn’t breathe. The nurse gave me oxygen, than more oxygen , then more oxygen, then I passed out. They ordered the pulmonary “crash team” to save me ! I had pulmonary edema. They intubated me over night. The next afternoon, they removed the tube and I was fine. Close call! My cardio doc said the procedure went perfectly. He couldn’t explain what happened. But, I’m still alive at 80 years old and enjoying every day! It’s a gift !

July 27, 2025

Related Questions

View All
A MyHeartDiseaseTeam Member asked a question 💭
Brick Township, NJ

A MyHeartDiseaseTeam Member asked a question 💭
Tempe, AZ