Does Anyone Have Experience With Weaning Off/stopping Amiodarone? What Side Effects Are Typical, And How Long Will They Last? | MyHeartDiseaseTeam

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Does Anyone Have Experience With Weaning Off/stopping Amiodarone? What Side Effects Are Typical, And How Long Will They Last?
A MyHeartDiseaseTeam Member asked a question 💭
posted March 8, 2022
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A MyHeartDiseaseTeam Member

Amioderone almost killed me. My cardiologist wouldn’t take me off of it even after I told him I was having every side effect listed. Soon after I had a bilateral pneumothorax, both of my lungs collapsed at the same time. I was put on a vent and my family was called in to discuss “next steps.” Fortunately, I had gotten an appointment with a world class cardiologist for a second opinion before all this happened. He told me if I continued to be treated like I was, I had a 20% chance of living 6 months, 10% chance I’d make it a year. The first thing he did was take me off amioderone. Amioderone can destroy your lungs. I would suggest you see another cardiologist and explain your problems with that poison. You shouldn’t change any med without medical advice, but what I’ve read says discontinuing has little risk. You may want to check this out. Good luck!! https://www.drugs.com/tips/amiodarone-patient-tips

posted March 16, 2022

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