I find myself suddenly wanting to rush home and get back to "safety" when I am at a doctor's waiting room, a public elevator...And then I realize that although everyone in my family are wonderful helping me, I try not to need help so I don't feel like I am imposing.
I often sit in the car while she goes and does the groceries so not to slow her down.
I dont always want to be alone, but am almost always alone, she works nights sleeps days and naps after supper.
I tell her its not up to her to change her life for me, its up to me to adapt my life to this disease, I find myself lonely tho. yet I d rather not go and see people fro fear of being in their way. like its not as if I can go help someone do anything.
So true, people tell me that all the time, you sure look good but yes it is the disease inside that plays havock with us.I am a very active person so of course nothing could be wrong with me right? I am a positive person and always upbeat, that is my choice, not always easy but it sure beats feeling sorry for myself. Life is what we make it . I chose to enjoy what I have left and everyday is a true gift. God bless you All
Recently I pulled into a parking lot for one last errand, felt panicked, drove right out and went home. I realized that I just can’t do the things I used to do and i’m learning to pay attention to my body.
@A MyHeartDiseaseTeam Member I am experiencing the same issues..i am surrounded yet I feel so alone and useless at this time..
All I could do to walk, had to hold onto things to get yo the bathroom, blood pressure was 200/120, wife wasn't home, so I went by ambulance to the ER, set off alarms everytime the automatic blood pressure machine took my blood pressure, yet they sent me home, 3 hours later, told me to see my family doctor. This was at s hospital who advertises that they are a great heart hospital. Did not even keep me for observation. After seeing my family doctor. He sent me to a heart doctor.
Put on medication, had a cardiac MRI, found out I have a 4.01 cm aneurysm, plus 3 leaky heart valves, which heart doctor says not to worry about.
I am not one to complain, but I run out of energy very quickly, I give 110% at my job. To look at me, people think there is nothing wrong with me and tend to think I am just lazy. I do not wish this on anyone, but I think everyone should have to live with heart problems, for one week, they would see that it is hard.
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