U.S. Olympic medalist Jenny Simpson has shared that she is living with a rare inherited heart condition after experiencing sudden cardiac arrest in June.
Simpson, a three-time U.S. Olympian and former world champion in the 1,500 meters, collapsed June 16 after running at the Sir Walter Running Pop Up Miles in Raleigh, North Carolina. Bystanders immediately performed CPR and used an automated external defibrillator (AED).
Her pulse returned before she was taken to the hospital.
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In an August update, Simpson said doctors diagnosed her with arrhythmogenic right ventricular cardiomyopathy (ARVC), a disease of the heart muscle. The condition can disrupt the heart’s normal electrical signals and cause dangerous abnormal heart rhythms.
The diagnosis also means Simpson will not return to running. “That chapter has ended,” she wrote on Instagram. “Thankfully, my story hasn’t.”
“That chapter has ended. Thankfully, my story hasn’t.”
— Jenny Simpson
For people living with heart disease, Simpson’s experience may feel familiar in another way: A heart condition can affect much more than the heart. It may change routines, plans, work, exercise, and activities that have long been part of a person’s identity.
‘My Relationship With Running Must Change’
Few activities have been more central to Simpson’s life than running. She:
- Represented the United States at three Olympic Games
- Won a bronze medal in the 1,500 meters at the 2016 Olympics
- Became a world champion at the 2011 World Championships
More recently, she has continued supporting recreational runners as chief running officer at Fleet Feet.
After her diagnosis, however, Simpson said continuing to run would be dangerous for her. “My relationship with running must change. My love for it is stronger than ever,” she wrote.
“My relationship with running must change. My love for it is stronger than ever.”
— Jenny Simpson
She said she plans to remain involved in the running community even though she can no longer participate in the same way: “I won’t be out there running beside you, but I’ll still be right where I belong — supporting and cheering for this running community that has given me so much.”
Physical Activity and Heart Disease: Is It Safe?
For other people with heart disease — including other athletes — an activity change may look very different. Simpson’s restriction is based on her specific heart condition and medical situation. Having heart disease doesn’t automatically mean a person needs to stop exercising.
In fact, physical activity can be an important part of heart health for many people. The type and amount that are safe depend on the individual condition. The American Heart Association recommends working with your healthcare team after a cardiac event or diagnosis to understand when and how to return to physical activity.
Some people may also be referred to cardiac rehabilitation, a medically supervised program that can include exercise, education, and support.
If a heart condition has changed what you can safely do, your cardiologist can help you understand which activities may still fit into your life and which ones you may need to modify or avoid.
Finding Purpose When Life Changes
Simpson has also been open about the emotional side of adjusting to her diagnosis. “My future is an incredible gift,” she wrote. “It’s hopeful, and it will continue to have great purpose.”
Learning that a longtime activity needs to change can involve many emotions. People living with heart disease may experience fear, anxiety, stress, or grief as they adjust to changes in their health and daily lives.
Support from healthcare professionals, loved ones, counselors, or others living with heart conditions can be part of that adjustment.
“You might be wondering what would be the right thing to say to me after an event like this?” she wrote. “Please do not say that you’re sorry or that you feel bad for me. If it is true in your heart, please tell me you’re glad that I’m here.”
She added, “I’m not afraid of what comes next because I know I’m not alone.”
“Please do not say that you’re sorry or that you feel bad for me. … I’m not afraid of what comes next because I know I’m not alone.”
— Jenny Simpson
Her comments offer one reminder that support after a serious heart event doesn’t always have to mean finding the perfect words. Listening to what someone wants, staying connected, and recognizing the parts of their life that still bring meaning can matter, too.
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