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I had an ICD placed in 2020 because of lower ejection fraction (HF) is was 15 percent, now 40 still low. I was wondering has someone ever had their ICD removed if their condition improved, I know normal EF is in the 50's and 60's, but can decrease again so an ICD can be permanent. I forgot to ask my cardiologist have some ICD been removed. I know they removed them if you are in hospice or any situation like that. I just wish they were sometimes temporary. Take Care all.
@A MyHeartDiseaseTeam Member,
It is easy for me to accept the devices, the hardest pill for me to swallow was the fact that I suffered a massive heart attack with irreversible and progressive damage. Even worse was that I wasn't expected to survive 3 years without a transplant. I still have my native heart and it's been 12 and a half years. I have a DES stent and an A-ICD. You can do this because I'm going to keep doing this and my A-ICD sticks out of my chest. I'm tiny.
Robin
Wow, almost 20 years. I never have read of anyone having it removed. Thank you.
I've had an ICD since 2004, and my EF has never increased. It has been in the 20's forever. I'm on my third unit! I don't think it is a temporary thing...
@A MyHeartDiseaseTeam Member,
What I've been trying to tell you is once an ICD or any device is attached to your heart it is permanent. Your cardiologist was to have set down with you and fully explained the device and the fact that it now does what your heart can't do and is the reason why it was implanted. Most of us got here because of previous heart attack. A heart attack means that heart muscle has died. When you hear them say scare tissue it is dead muscle,that part of your heart is dead, your ICD is doing what that dead tissue can't and will never again do. The medications you take help strengthen what muscle you have left and it tries to stop more muscle from dying.
To remove it is to shorten the life we have been given because of it. This is your second chance, my friend that had it removed never left the hospital living. Then once you request it removed you can never get it back. I am a transplant candidate and I was told that if a heart becomes available my device will be attached to it. They said I now don't have to have a perfect heart but one stronger then mine.
Robin
@A MyHeartDiseaseTeam Member,
I could care less about it sticking out of my chest, it doesn't bother me in the least bit. I don't wear clothing to hide it and I'm proud to have it. And if anyone seeing it questions me I will take the time to explain what the device is, the reason I was given it and hold my head high because I'm still here.
Robin
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