Does Anyone Else On Here Have Transposition Of The Great Vessels? | MyHeartDiseaseTeam

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Does Anyone Else On Here Have Transposition Of The Great Vessels?
A MyHeartDiseaseTeam Member asked a question 💭

I was born with Transposition of the Great Vessels, the strong side does the weak sides work and vise versa. I have not had heart surgery, which at the time I was born makes me a walking miracle. Just wanted to know if there was someone else out there with a heart like mine.

posted January 22, 2020
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A MyHeartDiseaseTeam Member

Dr Palmer lives in Texas and I moved to Tennessee when I got married to my husband so keeping the same Dr isn't possible. I hated to lose him as a Cardiologist as he was a very good doctor.
I am sticking with my Pcp as she is a good doctor as well.

posted July 12, 2020
A MyHeartDiseaseTeam Member

Its been an interesting life.I have doctors all over me and all are amazed I am doing as well as I am.In 1990 they were talking a heart transplant but today i am still going with my God given heart and of course the wonderful pacemaker which works full time.I have learned so much about the medical field ...i love it.Life is a miracle ❤Blessing to you! Great to connect

posted July 6, 2020
A MyHeartDiseaseTeam Member

My daughter had TGA she had to get corrective surgery you are a walking miracle my daughter struggled until 6 days old when she recieved her surgery her sats dropped to the 40's and she was intubated at 3 days old! Our God has plans for her!

posted February 13, 2022
A MyHeartDiseaseTeam Member

I am having the issue of low blood pressure, 90's over 40 and 50, low. I feel fine other than being cold. Learned my blood pressure cuff was part of the problem but my doctor took my blood pressure and it was 118/64, so I guess ok. My heart feels funny at times. I am going tomorrow for the birth of my grandson and will make an appointment with my doctor when I get back. She cut my blood pressure pill in half for now.
Other than being cold, I have experienced leg cramps and a tingling sensation like they are asleep, she thinks that is from my diabetes, and a headache. Any input would be helpful.
Dena

posted August 20, 2021
A MyHeartDiseaseTeam Member

I see..its great to keep the same cardiologist. I see the same one for at least 20 years...once a year and pacer twice a year!
God Bless

posted July 8, 2020

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