A MyHeartDiseaseTeam Member
Good morning sitting in my hospital bed
I have had my Heartmate 3 LVAD for almost 50 months
First off I wouldn’t be alive without it. Probably hardest thing I have had to deal with is the complications infections, dizzy spells, passing out causing falls which have caused issues in themselves. Finally have developed into a double stroke last month, in a mobile time most things back to working
I may not be best person to talk to, but iam the exception to the rule. I a lot of minor issues till now I am doing good. The one thing about my situation is I am I still alive and mobile. I have been upset about my quality of life sometimes but I am still around to talk about it. All we can do is hope for the best and take what we get
Take one day at a time
Appreciate life as best you can
And remember this process has come a long way in its growth
Always research all aspects of your medical needs your are medical needs and learn everything you can you are your number one avocate for yourself
Be at peace with yourself and enjoy life
Meeting 7pm Monday on My LVAD on line. A bunch of us will talk .
I had a LVAD for 4-1/2 years
In 2018 I enter the hospital in very bad shape
EF was around 10% they told me the LVAD was my only option either get the LVAD or not walk out on my own two feet
It took two weeks to get me well enough to do LVAD evaluation lost like 30 lbs in water weight
It start out as destination therapy I had two more years to get myself 5 yrs free of stage 4 throat cancer
Got approved for transplant list almost
two years ago
I admit I have had a lot complications currently not on transplant list supposed find tomorrow, but not looking good been in the three times in last mouth and half currently waiting ER waiting for room ( 10 hrs and counting )
See what happens tomorrow
I miss riding my bike more than anything. I used to ride 10-15 miles almost.every morning, ate well, and kept stress low. Ended up with major heat disease. I don’t ride now because of low BP and dizziness. My BP hangs out between 95-105/44-55
Wow. Long time no hear. Wishing you well. I'm fine. Riding a bike, it's better than treadmill. I hope to lose weight.
I have an lvad put in but I didn't have it long it never jump started me. Because I pray hard l wasn't even home a week when I got a call to come back in for a heart. Everything has its reason. ❣️
My EF is not expected to change from its current 10-15%. My BP is usually 80’s/60’s and I feel fine. I do have occasional orthostatic issues. I have been down as low as 60/40, but was severely dizzy.
I had a widow maker 6 1/2 years ago with 100% blockage of the LAD or so I’m told. 80% of my heart is scar tissue and no longer works. My doctors are amazed at how well I am. I guess God has something in mind for me. I just wish He’d call or send me an email to let me know what it is.
Thanks for your note. God’s blessings for you, also.
Fredic, what a Blessing in your improvements. My EF was at one point just 15 percent, it is now after 2 years 40 percent, which is still HF, but I am Thankful to my God for his protection. How low of a BP are you talking about, for mine run low like 100/65, sometimes in the 90's over the late 60's, my lower left heart muscle is weak from a heart artery dissection. Cont. Blessings to you.
Thank you to all who replied.
I currently have an LVAD. For me it is a bridge to transplant. It is a major improvement to my health. I probably would not be alive with out it. For some a LVAD is destination therapy. It should improve and extend your quality of life. Any questions ask. I have had mine over 9 months now.