Who has had a pacemaker put in. Did it help?
I had a defibrillator/pacemaker put in at Mayo Clinic in 2002, at age 48. My pacemaker was set at 73 ( my normal heart rhythm rate is in the 60's) in a study that I didn't give consent to. I went down hill after the surgery and I complained to my Green Bay Wi cardiologist that I didn't feel well. I had abdominal bloating, tired and weak, Short of breath with activity After three years I had a series of cardiac arrests, that the defibrillator treated successfully. I returned to Mayo and was told that I had developed "pacemaker induced heart failure".
I was told that patients with cardiomyopathy and mitral valve prolapse have a higher incidence of developing Congestive Heart Failure. Mayo reduced the pacer rate to below 60...so my native heart rhythm was able to return. I instantly felt better after the pacer was turned down.
I was very upset with Mayo as I had no prior history of rate problems that would require pacing. Congestive heart failure is a chronic illness....once you have it, you will have it for life.
I also objected that I had not signed any consent to be experimented on and I was told "When you walk thru the Mayo door consent is implied, as Mayo is first and foremost a Research Faucillity ". Being an RN this did not set well with my sense of medical ethics. The researchers were able to slip in a clause that states that after 2002 consent must be obtained but it is impossible to hold Mayo accountable because of the ways the laws have been crafted in HIPPA.
I still battle Congestive Heart failure and now need a second Mitral valve replacement. I have Mayo and the device company Medtronics.
Me too. My ICD gave me a second chance. I need to be reminded some days to slow down. My answer to them is I will when I'm 6 feet under. I live life to the fullest, because we all have to go sometime , just not yet!
Had a pacemaker er installed 2 years ago. It stopped me from passing out due to low heart rate. Especially while driving.
I am on my 4 th daul chamber pacemaker.Oh what would I do without it?
My first in 1990 when I was 27 years old.Now 56 and it's done so well especially the last 3 years...I now have a steady heart rate.Beating at 80 beats 24 hrs a day.I have a fib issues and flutter but has improved alot.Dealing with corrected transposition of the great vessels.
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