Connect with others who understand.

sign up log in
About MyHeartDiseaseTeam
Real members of MyHeartDiseaseTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Pacemaker

Pacemaker

Who has had a pacemaker put in. Did it help?

A MyHeartDiseaseTeam Member said:

I had a defibrillator/pacemaker put in at Mayo Clinic in 2002, at age 48. My pacemaker was set at 73 ( my normal heart rhythm rate is in the 60's) in a study that I didn't give consent to. I went down hill after the surgery and I complained to my Green Bay Wi cardiologist that I didn't feel well. I had abdominal bloating, tired and weak, Short of breath with activity After three years I had a series of cardiac arrests, that the defibrillator treated successfully. I returned to Mayo and was told that I had developed "pacemaker induced heart failure".
I was told that patients with cardiomyopathy and mitral valve prolapse have a higher incidence of developing Congestive Heart Failure. Mayo reduced the pacer rate to below 60...so my native heart rhythm was able to return. I instantly felt better after the pacer was turned down.

I was very upset with Mayo as I had no prior history of rate problems that would require pacing. Congestive heart failure is a chronic illness....once you have it, you will have it for life.
I also objected that I had not signed any consent to be experimented on and I was told "When you walk thru the Mayo door consent is implied, as Mayo is first and foremost a Research Faucillity ". Being an RN this did not set well with my sense of medical ethics. The researchers were able to slip in a clause that states that after 2002 consent must be obtained but it is impossible to hold Mayo accountable because of the ways the laws have been crafted in HIPPA.

I still battle Congestive Heart failure and now need a second Mitral valve replacement. I have Mayo and the device company Medtronics.

posted over 2 years ago
A MyHeartDiseaseTeam Member said:

Me too. My ICD gave me a second chance. I need to be reminded some days to slow down. My answer to them is I will when I'm 6 feet under. I live life to the fullest, because we all have to go sometime , just not yet!

posted about 4 years ago
A MyHeartDiseaseTeam Member said:

Had a pacemaker er installed 2 years ago. It stopped me from passing out due to low heart rate. Especially while driving.

posted 10 months ago
A MyHeartDiseaseTeam Member said:

I am on my 4 th daul chamber pacemaker.Oh what would I do without it?
My first in 1990 when I was 27 years old.Now 56 and it's done so well especially the last 3 years...I now have a steady heart rate.Beating at 80 beats 24 hrs a day.I have a fib issues and flutter but has improved alot.Dealing with corrected transposition of the great vessels.

posted almost 3 years ago
A MyHeartDiseaseTeam Member said:

I have a Bi Ventricular Pacemaker for Resyncronisation Therapy has slightly helped no improvement on Ejection Fraction still at 15% but has a Defribillator and guards against VF, VT and Cardiac Arrest.

posted about 3 years ago
Already a Member? Log in
MyHeartDiseaseTeam My heart disease Team

Thank you for signing up.

close