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Hey Everyone. Diagnosed With Hcm. Wondering How Someone Feels Daily With This And Advice.

A MyHeartDiseaseTeam Member asked a question šŸ’­
Scammon Bay, AK

Any information be helpful and appreciated. I can help with information too. Thanks everyone

March 17, 2023
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A MyHeartDiseaseTeam Member

Hi, Joseph. I was diagnosed with HCM in 2018 after my primary doctor heard a murmur during a regular visit. In December of 2022 I was in the hospital for an illness and the hospital doctor decided
he wanted an echo. Well they brought me a name of a structural cardiologist and told me I should be seeing him. I did and tests were done that I never had before. I found out that I was in worse condition than I knew and needed surgery. My surgery is scheduled for 3/24. I have no energy, sometimes it's very hard to breath, and quite often I am very dizzy. I have found the Hypertrophic Cardiomyopathy Association and listen to the podcasts often. I am looking forward to life after surgery instead of being afraid this new life I've been living would be normal.for the rest of my life. Please tell me about your HCM and how you're doing.

March 18, 2023
A MyHeartDiseaseTeam Member

Im sorry i dont have answer but someone here will its great site for help and compassion we all here for reason

March 18, 2023
A MyHeartDiseaseTeam Member

Forgot to say wishing you good for your surgery on the 24th.

March 22, 2023
A MyHeartDiseaseTeam Member

Hey, nice to meet you. Primary doctor herd a murmur and referred me to a cardiologist. After eco and ekg found out I had HCM. Before I was really tired all the time and no energy. Most of my childhood seem to have more fatigue compared to the others my age. Went undiagnosed cause of no symptoms until a few months ago. Right now I’m on 2 types of blood pressure meds to balance it out. Still an ongoing process with the meds. Next appt is on april 6th. Feel better now compared to before, but still feel my heart pounding when laying down and short winded allot.

March 22, 2023

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