For my husband

For my husband

My husband was diagnosed with CHF this week, I want to prove to him that you can live with this. He's on medication and a low salt diet.
Would like to hear from people who are living with this, your stories good or bad, just so I can help him understand what is going on.
Thank you and God bless you all

A MyHeartDiseaseTeam Member said:

For My Husband I live with CHF also Right sided CHF. I just had a serious bout with it. I am on Spirolactone and Tousimide. Twice a day I can't miss a day. Also I am on a salt restricted but I just don't use salt at all. Also a fluid reduction to 2000 ml of fluid a day. That is the hardest part for me. But the thing is if you don't limit those two things you will be in the hospital often

posted about 2 months ago
A MyHeartDiseaseTeam Member said:

Yes, ChF is a very doable disease!! I am on Entresto and metoprolol and I am doing quite well!! My EF has up from 25 to 40 in 8 months!! Hugs and Blessings!!

posted about 2 months ago
A MyHeartDiseaseTeam Member said:

I'm on a prescription of 25mg Spiralactone per day. I never had any foot or leg swelling. I did have abdominal bloat (belly tight as a drum, not so much swollen, but just rock firm to the touch, and quite uncomfortable). Lasix took 15 pounds off me in 3 days. Nearly 20 more have come off through the Spiralactone and liquid restriction in the 53 days since. However, I'm not after weight loss. I'm on nearly no sodium (500mgs or less per day) mainly to keep down fluid retention and hopefully to improve my ejection fraction (though my sodium level 3 days into this whole 56 day, thus far, long process was only 137, and is now 136 -- bottom of the range). I feel great; not at all like the doctors and medical folks seem to believe I should. I feel like I am getting much better. I am rather dizzy from the not quite 2 week old doubling they ordered of my Entresto, ... and I haven't even gotten to the new tablets, ... which will increase the dosage even a fraction more than doubling up on the old pills has. I'd really like to see a current EKG graph, and the old ones (never seen any since the Urgent care ahead of being admitted back on 10/9/19), and have an explanation of my T-wave abnormality, as I haven't any way to gauge what that charting means (this might be that I add a beat every 4th, or that it is every 40th, or that I drop a beat on either pattern, or it could be wildly irregular, for all I know, but I do know that I'm not too stupid to want to know, or to be able to make any judgement calls based upon knowing). I'd also like a current echocardiogram, so that I know if I'm making any headway at all with the ejection fraction. Then again, I'm also likely so ADHD scattered that a puppy might be great too, ... or some ice cream (oh, super bad for me), ... or look, there's a squirrel! (joke)

posted about 2 months ago
A MyHeartDiseaseTeam Member said:

I have chf and I have been told to watch my fluid intake. I also take lasix for excess water retention. With my chf I occasionally get fluid around the heart which is why it's important to track fluid and salt intake. I have not totally cut out salt I try to pick items below500in sodium.
Another good tool I use is my fitness pal app. It tracks what you are eating and how much sodium you have in the foods you choose

posted about 2 months ago
A MyHeartDiseaseTeam Member said:

I have CHF (A-FIB) with COPD. I take 2 different diuretics, low-salt diet and restricted water-intake but still end-up sometimes with water-weight gain. I weigh myself every morning, take my BP and O2 levels as well as do a chart of how I am feeling. But, water-weight gain is a real issue with me and I usually end up in the ER and then hospital as I have gained as much as 10 LBs in 3 days. Worst was 40 LBs in 1 week when I was diagnosed with A-FIB/CHF in July 2018. So, do everything you can to keep the weight down, but do not hesitate to call your DR if you gain 2 or 3 LBs in 2 days. Also, look at your legs every day and make sure they are not swelling. Know what they look like when normal and make sure the skin is not spongy to the touch. Anyway, that is how I deal with all this.

Walt

posted about 2 months ago
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