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Anyone Here Diagnosed With Hypertrophic Obstructive Cardiomyopathy ? I Know There Is No Cure, But What Do They Do To Relieve The Symptoms ?

Anyone Here Diagnosed With Hypertrophic Obstructive Cardiomyopathy ? I Know There Is No Cure, But What Do They Do To Relieve The Symptoms ?

A MyHeartDiseaseTeam Member said:

Yes praise God your cancer free!Lobectomy tough surgery!Open heart should be easy for you.Being scared is normal,but that surgety is routine these days.I havent had,but am Respiratory Therapist and have lots if postop heart patients.Youll be fine.Do what nurses and therapist ask of you and God will see you thru it.Prayers for you stay positive!!!🙏🙏🙏🙏❤⚘

posted almost 2 years ago
A MyHeartDiseaseTeam Member said:

I have CHF caused by HOCM and am part of the 5% who survived a heart attack. I survived because I did not ignore the symptoms and was taken to a first rate hospital immediately. I also credit the EMT who had enough training to know that not every heart attack presents the same way. Now, 9 years later, 2nd heart attack, 2 valve replacements, 1 device implant & removal, endocarditis, kidney failure, and the worst round of antibiotics imaginable I AM STILL HERE and enjoying my life. After all of this, I am convinced that the precise moment a person will pass from this earth is preordained and worrying about it will not change anything. Trust your doctors, do what they say, enjoy your life to the fullest you are able. Thank God for every day.

posted 10 months ago
A MyHeartDiseaseTeam Member said:

Yes, I have Hypertrophic Obstructive Cardiomyopathy as well as aortic regurgitation and other non-heart issues. One of my other problems is a hip without hardly any cartilage remaining. Four or five years ago I was told I was a candidate for a full hip replacement, but my cardiologist strongly urged me not to pursue it. When I asked why he said something about a thickened heart muscle. He explained to me what a "big deal" type surgery it would be if/when I needed my aortic valve replaced, but I never quite understood about the cardiomyopathy until I saw a news story on TV about a high school athlete who'd collapsed on the basketball court. The reporter said the young athlete had hypertrophic cardiomyopathy and mentioned that only about 5% of people with that condition survive if they go into cardiac arrest. Needless to say, that scared me. I guess I'll be okay with using a cane or walker the rest of my life vs. taking a chance on hip surgery!

Since I have more than one heart condition, I'm not sure I know what the symptoms of HOC are. I only know it makes me high risk for any type of surgery. What symptoms have you experienced?

I don't know which of the medications I'm on are related to my HOC, but they do keep an eye on it by having me go for an echocardiogram every so often to check my ejection factor.

posted over 3 years ago
A MyHeartDiseaseTeam Member said:

Thank you for your responses. I do feel encouraged and God blessed me with my cancer experience throughout. i am grateful a diagnosis of HOCM was made. When I look back I had many episodes that could have very likely have ended my life. I will get passed this too.

posted almost 2 years ago
A MyHeartDiseaseTeam Member said:

I am new on this site and was searching for my disease HOCM. Hypertrophic obstructive cardiomyopathy. I also have a torn aortic valve and mitral valve regurgitation. I see a surgeon this month at NYU Langone that has it's own HCM department so I am confident I will get the best answers there. The surgery for this is open heart. I am terrified. A year ago I underwent a lobectomy for lung cancer, had chemo and I am thanking God I am cancer free. I just wanted a little more time to recover and live life.

posted almost 2 years ago
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