Heart Issues | MyHeartDiseaseTeam

Connect with others who understand.

sign up Log in
Resources
About MyHeartDiseaseTeam
Powered By
Real members of MyHeartDiseaseTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Heart Issues
A MyHeartDiseaseTeam Member asked a question 💭

I have issues with my heart, my valves are thining I'm on medication as it over beats, yet I'm not class as at risk from covid 19, I do not receive emails from the NHS, yet Im still under the hospital, my next appointment is next year, it doesn't make sense to me.

posted November 20, 2020
•
View reactions
A MyHeartDiseaseTeam Member

You should find a Cardiologist and you be the reporter for yourself you interview them if you prefer I had a wonderful Cardiologist I thought the world of both of them, I went to a group, find a Doctor and then tell the hospital and see where that goes. Remember its y our body and nobody owns you tells you where to go. You tell them off and tell them where to go if you are like that. I get bawled out I cry I had issues with this lady Mary Beth from the hospital, this lady says to me, "I felt so sorry for you I couldn't give blood I was dehydrated she bawling me out Mary Beth I started crying it was awful , my early stages of having heart transplant I on heavy meds prednisone its a nasty drug, I begged to get off pleaded and it worked, You have to advocate for your own body. Its a hard journey. Thank God I don't deal with Mary Beth, I had a biopsy and a bleed out, not good, she comes to me, "You worry me," I say to myself "go away please and who knows what I said but it was hard I be so emotional crying so much. I started hating her but not seeing her is refreshing. Isn't that awful! ? But since I have done so well I got the nasty drug Prednisone I lost weight and they happy and that makes me happy. So much! God is good and God bless you

posted January 12, 2023
A MyHeartDiseaseTeam Member

I would like to share a story about an experience that I had in the ER with one of their doctors. Out of all the times I had to deal with him only two were handled right. So on one of me frequent visits he came in to see me no hello's, no what brings you in today, when they can clearly see that you are suffocating because you can't breath and they can hear you. Right off the bat he says to me, "You again! Now what". I was sitting up because I couldn't breath laying down. I had an IV in at this time. He is pointing his finger at me and saying things were uncalled for. He is a bully and diffently not a man. I told him that he was standing way to close to me to be talking like that to me and I looked down to see how far I had kick if I had to it wasn't far. So I said you get someone in here and take this IV out or I will. He backed up after I said he was standing to close to me to talk to me like that. He never said another word. He left the room and sent in a nurse to take the IV out. She got a wheel chair and took me out to the lobby and left me there in front of the windows. Never said a word to what so ever. The two nurses sitting at the desk I told them I better not see a bill from this place for tonight. Or I would sue the pants off of them, My husband got there and came and took me to the car and then home. Next morning I called the patient care team and filed a complaint against them and it was dealt with. Later I got a letter from some nurse and aids telling me how sorry they were and helped me get through this. I felt vindicated. Did I like who I became because of this person no. No one should have to go through that kind of treatment. You have gotten some great advise here. But I want to add something here something that I learned going to my doctor. I went to her about a more recent thing that happened. I went to my doctor and reported this particular event and it was on two diffent doctors. She took care of the problem and it stopped.

posted May 3, 2023
A MyHeartDiseaseTeam Member

I would get a pat on the shoulder and a tissue and then we talk it always ended good just leaving is always good. I dyslexic and have hard time paying attention so I always ask for written directions and I eventually would bring that forward in talking to them it helped me so much learning how to talk to Doctors and people with title, you know its hard sometimes..

posted February 19, 2023
A MyHeartDiseaseTeam Member

That sounds like me. If I get my feelings hurt or upset about something I'm crying too.

posted February 19, 2023
A MyHeartDiseaseTeam Member

Tina with all the new changes going on in the Medical Field it is very important to be your own advocate. You know your body better than anyone else. If you are uncomfortable with this doctor check out other Cardiologist. Something doesn't sound right with this picture. I have had to change my doctors many times due to falling through the cracks. I speak up when it is necessary to do so. As a matter of fact I have to drive to Billings Montana to see an eye doctor to do surgery on both eyes cause I won't have it done here. Also I am trying to see a Neurologist in Neurosurgery also because things are not going right here with the new issues that have come up. You do what you think is right. But what I am trying to say is you have options in your corner. Good luck.

posted December 31, 2022

Related content

View All
Has Anyone Had Heart Ablation Done For Afib
A MyHeartDiseaseTeam Member asked a question 💭
Last Year I Had 3 Stents Due To Heart Failure. Will I Have Other Issues With My Heart? Im Pumping Good For Now.
A MyHeartDiseaseTeam Member asked a question 💭
Has Anyone Heard Of The Heart Brain Device Thats Being Used On Heart Failure
A MyHeartDiseaseTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in